Hmm. I don't normally do this. Let's see how we get on.
Most of you probably know that I have pretty severe Psoriasis. It's been well under control for around seven years now, due to a marvellous cocktail of medications and the wonderful support of the NHS. Every six weeks I sit in a chair and have magic drugs pumped into my arm. It's awesome. They're somewhat dangerous drugs - a different dose of the same things that are used in chaemotherapy - so I have blood tests each and every time to keep an eye on certain things, particularly my liver function. Back in mid-October, one of the tests came back with some pretty wacky readings for one of the liver enzyme functions. Doctors were concerned, and immediately sent me for some specific liver tests and stopped all the medication. Now at this point I'm thinking Cott4ge->21 Smirnoff Ice->Liver fucked->oops
Three weeks of tests, and they finally have an answer - I've managed to contract Hepatits E at some point. Probably due to badly cooked pork. Naturally I assured them that pork and I have an understanding and it would never betray me like that, but they were unconvinced. It was then a process of repeated blood tests and waiting until the Hep E had cleared out of my system before they could restart the medication.
So all this time my Psoriasis is getting worse and worse. From around mid-November onwards, it's been really bad. My hands and arms are basically raw - you've probably noticed I have gloves on in any recent photos - and I've been in constant excruciating pain. I've hardly slept since then, because even slight movements in your sleep means your arms are rubbing against something and the pain wakes you up. A lot. Being in pain all the damned time makes everything else more difficult - you put all your effort into ignoring pain, and even little things just really, really get you down so easily. Self esteem pretty much disappears when you look like you've just escaped from the set of a b-movie horror film, and when you can't go anywhere without leaving a trail of flaking skin and grease marks from having to constantly coat yourself in moisturiser.
So, come most of the way through December, they finally agreed to restart the medication - and do so on an accelerated schedule to get me back into a reasonable state. Unfortunately, there's very specific timing involved, which meant that Christmas day, which was supposed to be spent with friends, was instead spent sat on an IV in the Chelsea and Westminster hospital for six hours, then coming home and throwing up a lot. First time I've spent Christmas on my own in 35 years, and it was damned tough, much worse than I was expecting. Then had the third of my IV sessions. Needle went in, and I immediately blacked out. Blood pressure dropped to 'barely alive', and they immediately stopped the IV. And I'm back off the meds again while they try and decide what to do with me. So finally heard yesterday that they're stopping that medication entirely. Next week they'll be trying something new. I've pretty much had most of the optimism beaten out of me by this point, so I guess we'll just see what happens. Getting bored of this now.
TL:DR - modern medicine is amazing, until it breaks.
Eugh. Sorry about that uncharacteristic emo-splurge. I think I need a shower. You'll now be returned to your regularly scheduled programming.
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GoddessJasmine wrote:
Drunk, pulled Craster's pork, waiting for brdyime story,reading nuts. Xz